FAITH IS BEING SURE OF WHAT WE HOPE FOR AND CERTAIN OF WHAT WE DO NOT SEE. HEBREWS 11:1

Thursday, December 31, 2009

GOODBYE 2009

Rick was grumpy today. Not sure what was going on with him. This morning he had an early OT tech session and we weren't here yet. They said they got him into the gym and he started pointing his finger and giving the tech the what for, so they brought him back to the room and asked him what he wanted and he said "my wife". So, we got here shortly thereafter but he continued to be agitated off and on all day. He got mad at Riley this morning and then he got really mad at Cade at lunch because Cade ate all of his potatoes. I didn't see it happen, but Rick waved his hand and got my attention and I said, "what's wrong?" and he said, "he ate all my food" and he had his eyebrows all knitted down and he was seriously mad about it. He got on to Cade and made him cry, so then he said he was sorry and everything was okay. We went to visit TLC this afternoon. It's going to be a tough move...again, we've built relationships here and these people will be hard to leave. It's also scary to think about TLC and going back to a "non hospital" setting.



So glad that 2009 is over with...the beginning middle and end were all bad for our family. We lost Rick's nephew in January, his uncle in June, then his accident and everything that has followed. On the other hand I have grown as a Christian leaps and bounds in 2009 and so have a lot of my friends and family. 2010 will be better for us.



So, how do we plan on ringing in the new year? The same way Rick does every year. He always says, "I'll be looking at the back of my eyelids!" Sounds like a good plan to me.



From my Max Lucado daily devotional:

I leave you peace; my peace I give you. I do not give it to you as the world does. So don't let your hearts be troubled or afraid. John 14:27


If only you knew that I came to help and not condemn. If only you knew that tomorrow will be better than today. If only you knew the gift I have brought: eternal life. If only you knew I want you safely home.

God bless and goodnight.

Love,
Crystal





Wednesday, December 30, 2009

DAY 193

Rick had the most amazing day...if he could only keep it up and string together a few amazing days in a row, we would really be making headway. Not to take away from today though because it was so good...from beginning to end. He has been so with it today. He did weight bearing with his arms this morning in OT and was messing around with Riley and takes her hat and puts it on his head! In ST he did wonderful...he voiced the entire 30 minutes session both this morning and this afternoon. A couple of times he was even loud! In PT he walked on the treamill this morning with very little assistance from me on the right and Chel'C still helping on the left. This afternoon in PT he worked on transfers and did really good with min to mod assist. He smiled more today than any other day so far and inititated a lot of conversation and movement. He has not lost his sense of humor!

More good news...we are moving to TLC on Monday! Woo Woo! It will be so good for him. They specialize in brain injury and can give him 6 hours of therapy a day...next stop after TLC...HOME! That magic going home date will be determined after the therapists work with Rick about a week and make a plan.

We are so blessed with amazing friends and family. Thank you for sticking by us and encouraging us these last 6 months. God is good all the time...all the time God is good. AMEN!

Love,
Crystal

Tuesday, December 29, 2009

DAY 192

Rick did so good today. In morning therapy he dressed in OT, he walked on the treadmill in PT, and he did pretty good in ST...turned his voice on a couple of times and his articulation is getting better and better. We had a visit at lunch time from Bubba Smith and Cotton Leathers. Rick was quick to give Bubba the loser sign! He was very glad to see them and smiled a lot and tried to visit while they were here. Riley went to town with Bubba and Cotton and came back with a new felt hat...Bubba told her she has to come to Dixon Creek and work it off...she said she'd gladly go, this week if he needed her. This afternoon Rick stood and stacked cones in PT, and made pudding in OT. It sounds crazy that making pudding would be a good OT activity, but it really was. He had to open the package of pudding and pour it in the bowl, pour the milk in the bowl and stir. He did really good, but it took him the entire 30 minute session to do it, and then Cade had to finish the stirring for the pudding to set. He played UNO in ST and did really good...cognitively he made the right plays, and Jeannie got him to voice what cards he was playing. On January 11th he will go for a scope with an ENT to check out the vocal chords and see if there is any other reason he is having so much trouble getting his voice on. Dr. Wolcott said today that we will move to TLC in a week to 10 days.

He called you to share in his glory in Christ, a glory that will continue forever. 1 Peter 5:10

God Bless You All,
Crystal

Monday, December 28, 2009

DAY 190 & 191

Rick had such an outstanding day yesterday. The kids and I didn't get here until 10:00 and I was griping at them because they wouldn't hurry up. I told them, "It's Sunday, and Daddy is probably sitting in his room all by himself wondering where everybody is." But, we get here and he is sitting down at the nurses station in his cowboy hat eating cookies and brownies! Shortly after that Big John and Sherry came and Rick shook John's hand and just smiled and smiled at him. We had a really good visit and then at lunch at the Cotton Patch. I took the kids shopping at Barnes and Noble then they went to Baker Chapmans to play. When I got back to the hospital Marty and Cheryl Connally were here visiting with Rick. He recognized them and it's been a long time since we've seen them.



This morning he seemed a little tired, but took a good nap this afternoon and is doing good. So good that he argued with me about whether or not he had a shower last night. He didn't want one last night and has to have one tonight, so that's a new one...arguing, but I love it!

Keep on keepin' on!

Love,
Crystal

Saturday, December 26, 2009

DAY ,189

Rick had a really good day today. He had a couple of hours of therapy this morning and then was off the rest of the day. He is doing so much better since decreasing the baclofen pump. His lungs are good and we are back on track. He has started trying to feed himself again, take drinks, and brush his teeth, and moving his left arm more...just back to where he was before the pump was set so high. So, now we are at 300 mics per day and I think we will stay here for a while...there is still some tone, but I think he can handle it, and I'd much rather see his personality instead of him being like a zombie. Today, he picked on Riley and Cade and it was just so funny to see.

Blane hasn't kicked us out yet, so we are about to head out there. The roads are still a little slick, but way better than they were.

Hope everyone had a great Christmas...thanks for all the cards and e-mails and well wishes....we didn't spend it in the most idea situation, but we are all here together and God has blessed us. When I went home last weekend, I walked into a house that hadn't been touched in 6 months. There were high school graduation invitations on the bar and all the dirty clothes were swimsuits and shorts! But the most ironic thing was the book I was reading...Never Give Up by Joyce Meyer...that's what I was reading before Rick was hurt...I couldn't believe it and how appropriate. So I brought it back with me to finish because we are Nevery giving Up!!!!

Love,
Crystal
Thanks for all the

Friday, December 25, 2009

CHRISTMAS DAY

Santa Clause found us at Blane's house...what a huge relief! My family did not get to make it for Christmas day...mom cooked all day yesterday, but there was just no way to make it with these roads. We still had a great Christmas...Blane's so generous and the kids have really liked staying at his place. Rick slept late, so he was really bright eyed and feeling good today. We went outside and took pictures...the kids played in the snow until Riley fell on the ice and hit her knee and then the fun was over...I had to haul her back to Rick's room riding in his lap. The kids and I ate Mexican food for supper and brought Rick back some enchiladas that he really enjoyed.

Happy Birthday Jesus and John Karl! Thank you Lord for sending your Son to save us. Please continue the miracle you have begun in Rick...finish so that everyone will give you the praise and glory you deserve. Thank you God for all you have done for us, we will continue to shine a light for you.

For to you is born this day in the town of David a Savior, Who is Christ the Lord! Luke 2:11

Praise God!

Love,
Crystal

Thursday, December 24, 2009

CHRISTMAS EVE

Looks like we got the white Christmas we've always wanted...at least in Lubbock it is...and if you're trying to get to Lubbock or out of Lubbock, goodluck! I tried to leave Blane's house this morning, but had a 3 foot snowdrift blocking me in plus the wind was blowing so hard, it was like a whiteout...couldn't have seen where I was going anyway. I finally made it to the hospital at 2:00...the normal 8 minute drive from Blane's turned into 28 minutes, but I made it safely. I asked his PT what kind of day he had, and her eyes lit up and she said, "Oh my gosh, he had the best morning ever!" I was so glad to hear that. No therapy for Christmas day, but he will get 3 hours of group therapy on Saturday to make up for Friday. I'll be heading back out to Blane's in a little bit...hate to leave Rick so early in the day, but I don't want to wait 'til dark, plus I have Santa Clause presents in my car. Rick and I talked earlier about what we would be missing this year at Christmas. I said, "what do we usually do on Christmas Eve?" and he said "go to Seymour to Mildred's (my g'ma)" And I said what do we do there? and he said "play Chinese Christmas" and I said, "& after that?" he said "play poker". Don't ask me how that tradition started, but that's what has happened at Grandma's house for as long as I can remember, and Rick always made Chinese Chrismas fun. ONe year my Aunt Robin stole a vest from Rick that he really wanted, and so the next year he took something like a vase or a cookie jar or something that he didn't care anything about, but Robin liked, just to get her back! He's always stirring up trouble. But, that's okay...we'll make it next year.

Hope everyone has a great Christmas, and don't get busted putting out Santa Clause like I did last year by Riley...I wasn't sneaky enough! God Bless You all!

Thanks be to God for his gift that is too wonderful for words. 2 Corinthians 9:15

Love,
Crystal

Wednesday, December 23, 2009

CHRISTMAS EVE EVE

Some things never change...once again I've done all the Christmas shopping this year, and Rick has done none! Ha! Sorry I haven't posted, it gets hectic when the kids are here. It looks like tomorrow Lubbock will be covered in snow, but everything should be clearing up before Christmas day. We have received some wonderful Christmas cards and I read every one of them to Rick, he really enjoys getting them.

Today I felt like Rick was getting back to his old self since the seizure. He walked a few feet with the EVA walker and his right foot was actually stepping heel-to-toe...I know you don't think about that, but his right foot had been just stepping flat. He still walks on his toe on the left side, but the scissoring is getting better. Today the ST also suggested a scope by an ENT to look at Rick's vocal chords. This was done once at Baylor, but it certainly wouldn't hurt to do it again, and get a really good look at what might be going on with his voice. In OT he "roped"...really he was practicing his hulihann maneuver today.

The kids ditched me today for Blane Chapman and his girls! We spent the night with them last night and my kids went with them today. Apparantely they've been all over Lubbock and even got to go see the new chipmunks movie tonight! Blane has been so kind as to offer for us to stay with him...my kids and his kids are all for it, and he lives really close to Trustpoint. His place is quiet and way better than a hotel room!

Hope y'all have a good night...stay warm!

Love,
Crystal

Monday, December 21, 2009

DAY 183 & 184

Rick woke up a little nauseated this morning and threw up a little bit before therapy. He has seemed fine ever since and has eaten good all day. He got agitated 3 times today...agitation is part of the healing process, but it is hard to watch him get so mad. First with Amanda, she was checking the tone in his left arm and she jerked it really hard. He grabbed both her hands and got a hold of her. He wouldn't let go and had her locked in his sights. Then he started trying to talk or I guess I should say cuss her out. We couldn't exactly make out what he was saying, but it would probably all have to be bleeped out! He did it again to Chel'C and then the Jeannie in ST. He wouldn't even let Jeannie touch him. All the nurses and therapists said it was great to see a response out of him and Jeannie was just tickled that she heard his voice. They also backed off his baclofen pump again today, which I am really grateful for. He's just been too loose and seemed very sluggish lately.

Thanks again for all your prayers and support. We are so blessed to have such great friends and family. I hope God gives each of you a special blessing for being such a huge blessing to us. I thank God for getting us through another day and for giving me the strength I need to manage.

Love,
Crystal

Saturday, December 19, 2009

DAY 182

We made it back to Lubbock safely...got here about 5 o'clock after an extended visit at the ranch. It was so good to see everybody and hard to leave. The kids played with the Jones boys...ridin' goats and "branding"...what else would country kids do?

Rick is doing good and has actually gained a few pounds...probably Mama Julie shoveling that food down his throat! We had visits today from Tricia and Shad Wayne and the Rankins. Brody and Brogan entertained Rick by roping the roping dummy. Rick is sound asleep right now.

We will not be moving to TLC until after the first of the year. I'm really ready to get there since the pump is straightened out. TLC specializes in brain injury rehab and Rick will be getting 6 hours of therapy a day. It's similar to Pate...not a hospital setting, just strictly rehab. When all this first happened, we hoped that we would be home by Christmas, and the kids have banked on that. They were counting on switching back to school at Guthrie. Unfortunately, we won't be able to since I have no idea how long Rick will be at TLC. I broke that news to them this week and they're okay with it.

I waited patiently for the Lord to help me, and he turned to me and heard my cry. He lifted me out of the pit of despair, out of the mud and the mire. He set my feet on solid ground, and steadied me as I walked along. He has given me a new song to sing, a hymn of praise to our God. Many will see what he has done and be astounded. They will put their trust in the Lord.
Psalm 40:1-3

Good night!

Crystal

Friday, December 18, 2009

DAY 180 & 181

I decided to stay in Seymour one more day. It's been so good to be here...my Dad cooks me breakfast every morning and then when I head to town everyone just embraces me. It is so wonderful and has been very good for my spirit. A lot of people have done a double take..."hey, it really is you!" So many people have shared their stories of overcoming devastating health issues...things they should have never overcome, but because of their belief in the Lord, it's happened. What a blessing to be from Seymour. I saw so many friends at the elementary school today during the Christmas parties and really enjoyed being there, and especially enjoyed seeing my old classmates kids...so funny to look at them & know EXACTLY who they belong to. Yesterday, I ate lunch with Riley and I felt like a rock star when I walked in...all these little girls staring and saying, "whose that, whose that" and then there's Riley beaming...."thats MY mom." Tonight we took the kids (nieces included) to the Rock Inn...had to have some onion rings and then drove around to look at Christmas lights.

Mom called and Rick had a really good day. Dr. Wolcott backed off the baclofen pump and mom could tell a difference immediately. He's been so loose lately that he can't do much for himself and just seemed lethargic. The catscan came back and looks good (PTL)...nothing new going on & that's good to know since the seizure. The kids, by the way overhead me talking to Dad and now know that Rick had a seizure on Sunday, but since it's all over with, they weren't too worried about it. Justin Johnson came to see Rick today, and mom said that Rick smiled the entire time he was there...you know what that means, Justin? That means you gotta come back more often!

We will head to Lubbock tomorrow and if we leave early enough might actually stop at Tongue River to pick up some things...I haven't stepped foot in my house in 6 months...it will be a little scary...there will be my life frozen in time...except I think Sammie did the dishes!

Thanks to everyone in Seymour for helping to recharge my batteries...it's been so great to see all of you.

Love,
Crystal

Wednesday, December 16, 2009

DAY 179

I'm in Seymour...yea! It was hard to leave Rick, but he understood and waved bye and blew me a kiss. Dr. Wolcott wanted to do a CT scan just to make sure there wasn't anything new going on in the brain after the seizure. The trip to UMC is only 5 minutes, but the minute we pulled up to the door Rick threw up...everything. So, we went back to Trustpoint and rescheduled the appointment for tomorrow and be sure to give him some anti-nausea medicine before hand. I left at 1:30, but Mom said he did pretty good this afternoon and was showered and in bed by 8:30. I'm looking forward to doing some normal things with the kids...like studying for midterms with Riley tonight (yikes!) and going to Cade's Christmas party on Friday. I plan on being back in Lubbock late Friday afternoon.

Please keep praying...God will answer our prayers we just have to be patient. I still believe in God and in Rick...he's a fighter.

God Bless You All.

Love,
Crystal

Tuesday, December 15, 2009

DAY 178

Rick's morning started off decent, but then he fatigued about noon. He's still dehydrated and is getting another bag of fluids...it was hard to get him to drink much today...just sips here and there. He's still pretty loose and Dr. Wolcott is considering decreasing the baclofen pump tomorrow...I hope he does it seems to me that all the increases have finally caught up to Rick.

I had quite a few visitors today...Shauna, Bobbie Jo Hrncirik (I can still spell it after all these years!) and her daughter, Courtney and Shad Wayne brought supper and a rope...what else could you ask for?

Tomorrow I plan on leaving to go to Seymour for a couple of days. My mom is going to come stay with Rick while I'm gone. When the kids get out of school on Friday we will head back to Lubbock. I know Rick will be in good hands, but I'm still a little anxious about leaving him.

Thanks again for all your prayers and cards and gifts...they are so appreciated.

Love,
Crystal

Monday, December 14, 2009

DAY 177

We found out some answers today as to why Rick may have had a seizure. He was running a little fever this morning, and when Krisann (NP student) came in she asked me how he was doing and I said I was concerned about his cough, or lack there of. He keeps trying to cough and can't really seem to get any force behind it. She immediately ordered a chest x-ray. When the results came back they said negative, but Krisann was not convinced. She called them back and said, "read it again." This time they said pneumonia...not a bad case, but I'm so thankful she called them back so we can nip this in the bud right away. Today was also Krisann's last day. It's amazing how attached you can get to folks in a months time...she's seen Rick almost every day that we've been here and we will miss her. Rick is also very dehydrated. The dehydration and pneumonia could have triggered the seizure. I hate that Rick has anything else wrong, but at the same time it's good to know that there was something that caused it, and he's not necessarily going to start having seizures 6 months after his injury. He went to therapy today, but wasn't exactly a ball of fire. He ate good and they started IV fluids and antibiotics...I feel like tomorrow he'll feel like a new man! And, you wouldn't think anything positive could come from a seizure, but today, he was so loose and Chel'C took advantage of it and stretched him...especially his neck. So once again God shows us that we have to trust him...he knows what's best in all situations.

We got a lot of very nice Christmas cards today and Kim Streit sent pictures from the team roping and they were fun to look at...who knew Stoney could grow a beard?!!!

We walk by faith not by sight. II Corinthians 5:7

Love,
Crystal

Sunday, December 13, 2009

DAY 175 & 176

We had a tough day today. It started out pretty normal, but then at 8:45 Rick had a seizure...the real deal this time. It was very scary. He woke up about 8:30 and I said "good morning" and he said "mornin'". I said, "How are you?", and he said "fine, how are you?" I told him I was going to finish getting ready and then I would get him up for breakfast. I went back in the bathroom and heard him make a funny noise. When I came back out, he had thrown up a little bit. So I got a washcloth and was cleaning him up. Suddenly, his head and eyes moved to the left very quickly and he started trembling for about 10 seconds, then turned back to me and started convulsing...it lasted about 2 minutes. The nurses and respitory where here in 2 seconds and had things under control. There isn't anything to do for someone when they have a seizure other than keep them safe, and turn them on their side so that if they do throw up they don't aspirate. I stayed calm and started praying. Dr. Wolcott was here within 10 minutes. They gave Rick adavan and it totally relaxed him and knocked him out. This will sound crazy, but they said it was a "good" seizure in that his never lost conciousness, he never lost continence, his vital signs all remained good the entire time. Rick hasn't been on anti-seizure medicine since September, but we may have to start him back on it. The labwork came back and everything is normal, so not sure if there was a trigger for the seizure or just related to having a TBI. He slept all day and woke up about 5:45, ate a little supper , used the bathroom and went back to sleep. I didn't tell the kids he had a seizure, only that he was very sick today. I had plans of going to Seymour to watch Riley's band concert. My kids are so understanding and have had to deal with a lot of things kids should never have to worry about. They were good with it. You know how we always talk about God's perfect timing...I'm just so thankful the kids weren't here today. And so thankful that I was...I just keep thinking, "what if I hadn't been here?" God takes care of it all. Please continue to pray for Rick's healing. He's the best person I've ever known and I do not accept this for him...I want him back 100%. He's tough and he's a fighter and he has the grace of God, so there is no reason not to get through this. Please continue to stand in agreement for Rick's healing.

I had a couple of bright spots in my day today. A visit from Blane Chapman this morning, and one this afternoon from Ryan and Lacey. I wish Rick would've felt up to visiting, but I know everyone understands!

Love,
Crystal

Friday, December 11, 2009

DAY 173 & 174

Where do the days go? I swear one minute it's five and the next thing I know it's 8:30! I'm thankful the days go by quickly...especially on the days Rick's tired, and he was defintely that today. He didn't eat very good today. He wouldn't talk in speech and then got really agitated with one of the techs when she was stretching him. She hurt him when she was stretching and he was trying to tell her "whoa" but she didn't hear him. It made him mad, and he let her know it. Agitation and frustration are common in TBI's and I know this won't be the last we see. This afternoon was group therapy...one of the activities was the game Memory and he actually made a match...so proud of him! Yesterday was a good day. He was talking good in speech...said the #'s 1-10 in a good loud voice. He still doesn't talk much outside of speech, but yesterday on the phone with the kids he was talking loud! He still needs a nap everyday when therapy is over and usually sleeps about 2 hours.

My Facebook page is still not working...I can read everything, but can't respond or accept friends...not from my laptop anyway. Not sure what's up with that. So, please don't think I'm ignoring you! I actually really enjoy winding down at night by looking at FB and it's frustrating when you can't comment or "like" anything!

When a believing person prays, great things happen. James 5:16

I BELIEVE AND I HAVE PRAYED!!!

AMEN!

Wednesday, December 9, 2009

DAY 172

I went ahead and posted the address here at Trustpoint...I have no idea when we'll move as they increased the pump again this afternoon. Rick had a really good day, and I'm so impressed with the effort and interest that his therapists and the techs have in him. Yesterday in PT Chel'C rigged up a boltster on the mat for Rick to straddle as if he was horseback and "roped" a post with a theraband. Today his OT had him "branding". She made a brand out of a clothes hanger and had Rick dip it in red paint and brand a sheet of paper hanging on the wall. In ST, Jeannie asked Rick if he played cards...he was actually teaching the kids to play poker when he got hurt...so, she has incorporated poker into his ST sessions. ST and OT are also working on cognitive skills as well. He had really good voice in ST again today. He was able to hold an "aahhh" out for 3 seconds...this is huge for Rick. Usually he can only make a sound for about a second. He took a 2 hour nap after therapy and was still a little groggy when Beverly and Monte Hollar came by to visit. He did eat a good supper and is waiting on a shower. We've been staying up way too late watching the NFR and I think it's catching up to him.

I thank God for getting us through another day, and especially for my family taking such good care of our kiddos through all of this...looking forward to Christmas break.

Hope y'all have a good night.

Love,
Crystal

Tuesday, December 8, 2009

DAY 170 & 171

Wow...can't believe we are to day 171. Today was a great day for Rick. They bumped the pump up yesterday, and we could tell a difference today. The biggy is that he is now able to extend his left arm above his head. Before, his shoulder was "locked" by the tone and he could only raise his arm to shoulder height and no further. He didn't even act like it hurt to push his arm up...it was really great. He also had good voicing in speech. The ST explained that the vocal chords are muscles too and they are just as affected by the tone as all the other muscles in his body. So, the baclofen must be helping there, too. She also told me to have him clear his throat and cough as much as possible to keep those vocal chords working and loosening up. Just now he was sitting in his wheelchair and was reaching for the thermostat. I asked him what he was doing, and he said pretty plainly, "heat up" and then put his hand on me and said "I'm cold".

We got some beautiful pictures from Marilyn Cheatham. She took pictures of Rick demonstrating his horses at the 2008 Remuda Sale at Pitchfork. The pictures are wonderful...Rick looks so relaxed and happy horseback. He looked at the pictures for a long time...thanks, Marilyn...great inspiration!

I also find great inspiration in Psalm 18...The cords of death surrounded me, and the streams of ungodliness and torrents of ruin terrified me. The cords of Sheol surrounded me; the snares of death confronted me. In my distress I called upon the Lord and cried to my God; He heard my voice out of His temple and my cry came before Him into his ears. Psalm 18: 4-6

The Lord is my rock and my salvation. When I'm tired, frustrated and scared I talk to Him. There are days that I wouldn't have made it through without Him. Even when things are heading in the right direction with Rick, I worry about the many unanswered questions. I will have my answers one day and one day my family will be put back together again.

God Bless.
Love,
Crystal

Sunday, December 6, 2009

DAY 169

Not much to report for today. I took the kids to the movies last night. We went to see The Blind Side...it was good. My mom picked the kids up today, and they left at 3:30. I gave Rick a haircut, stretched him out some and made him stand up and do some squats...just anything to not lose what we work on during the week. I showered him and he's in bed sleeping.

Judy and Kyle Helm stopped by and had the last 6 presents. One of the presents was a box of candy canes and had the following note with it:

Look at the Candy Cane
What do you see?
Stripes that are red like
His blood shed for me.
White is for my Savior
Who's sinless and pure.
"J" is for Jesus-
My Lord that's for sure.
Turn it around and a staff you will see.
Jesus, my shepherd, was born just for me!

Hope everyone has a great week.

God Bless You all,
Crystal

Saturday, December 5, 2009

DAY 167 & 168

I met my dad in Crosbyton yesterday and picked up the kids. We didn't do much last night...stayed at the hospital until 9 and then ate and went to the hotel. Rick's day yesterday was kind of blah. He threw up yesterday morning and just didn't seem to really care about much going on after that. He did have a new trick up his sleeve when I went to put him in bed. I had the bedrail up at the top of the bed and he reached for it, so I thought I would see what he was going to do. He stood up just enough to scoot his bottom over his arm rest and sat himself down in the bed...then looked at me and smiled a little like, "see what I can do?".

Of all mornings to have car trouble, I pick this morning...it was freezing and my battery was dead. Easy fix right? Wrong. My hood wouldn't open. Luckily there is a collision center next door to the hotel so 2 guys came over and practically took my grill off to get the hood up...the latch is totally messed up, so now my car hood is closed with a bungy cord and I can't go over 50 mph. Anyway, they have a part ordered and should have it in next week. We finally got to the hospital at 11. Kim, Phillip, Curtis, Jean, Melanie and Carson Graf all came to see us today. They are just like family to us. Rick is always happy to see them. After he ate lunch he took a nap and we went to Abuelos for lunch. We also had a visit from Tanner Kieschnick tonight who was taking a break from studying for finals. Rick told him to bring him 2 Bud Lights...now why would he think that Tanner would have any Bud Light?

I thank God for all he's done for us through this ordeal. We have a lot to be thankful for including the family and friends and complete strangers that have prayed and done so many things for us. I know we still have a ways to go, but it's been made so much easier by keeping the faith.

I still believe!

Love,
Crystal

Thursday, December 3, 2009

DAY 166

I have to start off tonight's post bragging on Riley. She won first place in UIL oral reading today. One of the judges said she should just skip high school and go straight to Hollywood!

Rick had a good day, too. He talked in speech again this morning. He answered about 6 questions pretty loud, well enough for her to understand his answers...she said he made her day. Still working on arm strength and range of motion in OT, and Chel'C is still focused on his neck, posture and walking. Dr. Wolcott discontinued his bloodpressure medicine, so one more med to be off of. He's been taking it ever since the accident...a precautionary thing...blood pressure and intercranial pressure are related. The highest his BP has been in the last 10 days is 120/79...pretty well perfect. We got a visit today from Matt McNabb and his mom and dad. It was great to see them...haven't seen Matt since August. Rick smiled and showed Matt how he can still "rope".

Today is my sisters b-day...Happy B-day, Pooh...thanks for taking care of my kids. Dig in your heels and refuse to get to "40" or you'll be old like Rick...and Sherry...sorry Big Sher, I think the gig is up, noone believes you're 29!

Present #3 A sign that says "BELIEVE" and a note that says in part, "'Believe' says it all for Jesus tells us many times exactly what to do; If you belive, you will receive whatever you ask for in prayer". Matthew 21:22.

Got to get Rick in the shower...good night!

Love,
Crystal

Wednesday, December 2, 2009

DAY 165

Dr. Wolcott bumped the pump up again this morning...I was actually a little surprised he did it so soon. He said that it will probably need to be bumped one more time and hopefully we'll have it set. I have a feeling we'll be here at Trustpoint until the middle to end of next week. He got 4 hours of therapy today and then took a 3 hour nap. I just keep praying that his tone will be manageable. His dose right now is not consider high by any means, but it just makes me wonder how much medicine he'll need. If he continues at the dosage he's receiving, he will need a refill in January. Refill is a pretty simple process. The pump has a soft port in the middle of it. The doctor will find the port and use a needle to refill.

I got a phone call today from a girl whose husband was at both Baylor and Pate with Rick. He went to outpatient about 3 weeks before we left. She was upset...having him at home is hard. He can talk and is now walking with a walker, but the docs changed his medicine and he started having pretty bad outbursts. I think she just wanted to talk to someone that understands. I encouraged her and told her it will get better and easier. It's frustrating because there is no "normal" with brain injuries. And we've proven every statistic wrong, so you kind of feel like your Christopher Columbus sometimes. I refuse to be bitter or angry. The answers will come one day and until then I will continue to be devoted to Rick and the task at hand.

Gift #2...4 stockings with our names on them filled with chocolate...Rick and Cade's favorite!

Good night.
Love,
Crystal

Tuesday, December 1, 2009

DAY 164

Praise God for another great day! We actually heard Rick's voice in speech therapy this morning...he said "hi" 4 times with a lot of sound. Jeannie (ST) has been massaging his face muscles to loosen them up and also working on strengthening his mouth muscles and tongue. The baclofen pump has helped loosen muscles in his neck and I think that is also contributing to the progress we are seeing in speech. He stood in the standing frame for about 20 minutes and then Chel'C ultrasounded his neck this afternoon. After she is through working on the muscles on the left she will work on the muscles in the back of his neck that are causing him to keep his neck stuck out all the time. He worked on taking his shirt off and putting it back on in OT. He is really using his left arm a lot more now and a tech works with him every day on stretching and range of motion, and Amanda makes him bear weight on it every day by standing him at a table and making him put both hands flat on the table and hold himself up...of course she has to help with balance, but he does a really good job...it's all starting to pay off.

Neill who is Dr. Wolcott's Nurse Practioner told me this a.m. that Dr. Wolcott wants to keep us here "awhile". I'm like "how long is awhile?" . We're going to play it by ear...get all the adjustments made to the pump that need to be made. Chel'C will probably have a big say in when it's time since she is the one measuring the amount of tone Rick has.

Christmas has come early for us this year. Judy Miller Helm is from Vernon, and now lives in Lubbock. She left a little surprise for us today. 12 presents with a note to open one a day for the next 12 days. The first present was a little snowman standing next to a tree with blocks saying "24 days 'til Christmas", and a note that said: Just like it can be hard waiting for Christmas, it can be hard being patient & waiting on God. So, remember James 1:4 when the waiting is hard. "Let patience have her perfect work in you so that you may be prefect and complete wanting nothing". How perfect of a verse is that. And, btw Judy, if your reading this...your in big trouble...you've done enough for us already!

Well, I've said it once and I'll say it again...there are so many GOOD people out there, and y'all are such a blessing to us. I thank God every day for all He's done for us.

Love,
Crystal

Monday, November 30, 2009

DAY 163

Today was one of the best days Rick has had in a long time. First thing this morning the student NP came in to check on him. She said, "Is there anything I can do for you today?", and Rick mouthed, "Let me go home.". Krisann just laughed and said, "Are you just a little bit ornery?" and she held her hand up with her thumb and forefinger about 2 inches apart...and Rick held up his hand with his thumb and forefinger just barely apart! It's just so great to see him interact. He walked 200 feet with the EVA walker this morning. Chel C (PT) said today that his tone is normal when he's sitting and relaxed, but still kicks in when he tries to do something...like walk. So, he pump was bumped up again this afternoon. But, just to hear the words "tone is normal" is music to my ears! His neck continues to loosen up and he's been very alert and active this evening. We've hit a few other milestones the last few days. He know longer needs his medicines crushed to take them, now we put them whole in applesauce and he can swallow them. He's also been continent of bowel and bladder about 95% of the time for the last 2 weeks and can even "hold it" over night...the nurses are like, "I can't even hold it over night!" Again, it's the little things we have to celebrate...Zechariah 4:10...appreciate the day of small things.

Tyler and Tanya Thompson visited last night. Tyler had another skin grafting surgery this morning at UMC and they will be here most of this week. He came out of surgery okay, but is in some pain according to their blog. I just can't imagine the pain he goes through, and pray that this grafting "takes" and he will never have to have another surgery again.

Terry and Kathy Carlton got the kids safely to Seymour for me yesterday. I've learned to take people up on their offers...no, I can't do this all by myself, but that's been hard for me to admit. I do appreciate all the offers to help and I don't want to impose on anyone...I understand that it helps everyone heal when they can help in a situation like this.

God's Blessings to you.

Love,
Crystal

Saturday, November 28, 2009

DAY 161

To make up for not having therapy on Thursday, the patients had 3 hours of group therapy this morning consisting of the parachute and ball, "volleyball" played with a balloon, bingo, and then we made cards for the soldiers in Iraq and Afghanistan. The kids enjoyed therapy more than anyone else did! Rick was completely smoked afterwards. He ate and then went to sleep...he slept for 3 1/2 hours and then couldn't really wake up...very tired today. Tom and Millard came this morning and then Bobby, Linda and Glenn came this afternoon and Terry Joe and Kathy Carlton also visited. We looked at the pictures again from the teamroping...I have a feeling that may be a daily thing for him...but that's good therapy, too. I don't think Susie is a professional, but she took some of the best pictures I've ever seen.

The kids and I are about to run grab supper. Thanks for all the support you've shown us...I honestly don't know how anyone can get through something like this without faith, family and friends.

Love,
Crystal

Thursday, November 26, 2009

THANKSGIVING DAY

We have a lot to be thankful for this Thanksgiving...usually we just think about having too much to eat and getting a day off, but this year it has much more meaning. We had about 16 people come for Thanksgiving...Chryal, Fran, Darrell, Lauri and Rachel, Mama, Pooh, Stan, Tess, Addison, Lynette, Jace and us. It was one of the best Thanksgivings we've ever had. Everybody cooked and we took over the activity room. Stan played the piano, and after lunch we watched the DVD of Rick's roping that Susie Osborne made...it was wonderful...Rick was napping and didn't get to watch it, but we absolutely LOVED it! Rick didn't nap this morning, but he made up for it this afternoon and slept for 3 hours which actually is pretty normal for him after t-giving!

We had visitors yesterday, too. Sherry and her niece Melissa, and Monte Hollar. Monte is banged up from a horse wreck and when he was telling Rick about it Rick made a face like, "ouch". He smiled at Sherry's crazy stories and they got to see him walk...his walking was pretty good. He usually needs a lot of help shifting his weight, but yesterday he didn't need as much help. Dr. Wolcott said that he would like to keep us here at least 1 more week. Which is really a good thing because Rick can barely handle the 3 1/2 hours of therapy he's getting since the pump has been bumped up. Staying here will help him build his endurance and he'll be ready for the 6 hours of therapy he'll get at TLC.

Thank the Lord because he is good. His love continues forever. Psalm 106:1

God Bless,
Crystal


Tuesday, November 24, 2009

DAY 157

Rick's baclofen pump was bumped up another 50 micrograms today, so now he's getting 200 micrograms of baclofen in a 24 hour period. We should start seeing the results of the increase tomorrow meaning he'll seem weaker since more tone is gone and his muscles are working harder. He had his neck ultrasounded today and nodded his head "yes" when she asked him if it was making his neck feel better. I missed a couple of sessions this morning taking care of paperwork, and then I went and got my hair "did" this afternoon and missed the afternoon sessions, too. The girl that does my hair is named Hollie Pounds and I've been going to her for about a year. She had no idea about Rick...just knew she hadn't seen me in awhile. When she got done she said, "that will not cost you a thing today...it's the least I can do"...it sounds crazy to praise God for a free hair do, but that's exactly what I did. Not only did she save me the money she reinforced the great Godly spirit that so many people have shown to us.

Lynette and Jace are bringing the kids tomorrow when they get out of school...so exciting to spend 4 days with them, and they are ready to see Daddy "do some therapy". Since there won't be any therapy on T-giving day, they will make it up on Saturday morning with group therapy.

When the master comes and finds the servant doing his work, the servant will be blessed. Matthew 24:46

Love,
Crystal

Monday, November 23, 2009

DAY 156

I'm writing this listening to Rick snore...he is OUT and has been since 3:30. He had 3 1/2 hours of therapy today. In one session of OT he had to take his shirt off and put it back on. He got it off pretty easy, but then was being stubborn and wouldn't put it back on the way Amanda wanted him to. I told her he's been putting in on a certain way for 3 months, I don't think we're going to change it now. So, she gave in and let him do it his way...Nored was here and when Rick got his face through the head hole he sat there with just his face sticking out and smiled at Nored...it was so funny. He finally got it put on...took 30 minutes. In speech therapy he is doing a little better, but the voice still comes and goes. Chel'C ultrasounded his neck again today with the deep heat, and he walked in the parallel bars. He's getting better about using his left arm and hand...his shoulder was x-rayed last week and once again showed nothing, so they've been spending extra time stretching it and doing range of motion activities. Dr. Wolcott has plans of increasing the pump again this week.

I give God thanks and praise every day for the progress we've seen in Rick. We've been at this for 5 months...hard to believe, and Rick has come a VERY long way. If staring at him healed him as much as praying does, he would be healed by now...I spend 3/4 of the day staring at him! I just wonder what he's thinking! One day we'll know.

Hope everyone has a great evening.

Love,
Crystal

Sunday, November 22, 2009

DAY 155

Considering I spent it in the hospital, today was one of the best b-day's I've had. Riley and Rick sang happy b-day to me this morning, Aleshia and Ashley came by with a cake and flowers and Joanna brought by cinnamon rolls with the # 21 on them...you got it Jo...I'm the same age as you! It's so good to see everyone...Rick was hoping A1 and Sunshine had a brewsky in their purse for him...they said "maybe next time!" Shauna took me to lunch at Olive Garden...still so full I didn't eat supper! She then took the kids and met my dad who was on his way back from Tulia selling cows. Rick has had a good day and continues to loosen up. PT ultrasounded his neck on Friday and I can tell it's a little looser...he's got a really tight muscle on the left side that continues to pull his neck down and to the left...but it's way better than it was.

Thanks to everyone who came to the team roping and to everyone that volunteered to help in any way. I know a lot of people put in so much hard work to make it a success and we will forever be grateful. Congrats to June Bug and Lane Livingston who won! Rick and I went on our first date ever with Jr. and Angie to Wichita Falls...we watched a movie (Sleepless in Seattle) ate at Chili's (it was brand new back then) and then went to K-Mart...Anna needed diapers and Rick bought a Jerry Clower tape...that's when I knew it was true love! LOL!!!

Tomorrow I should know more about when we'll move to TLC. It will for sure be by Nov 30th. I'm really pleased with what they've done for him here so far. Things are looking up. I still believe God will work a miracle in Rick...that he'll restore him to full health...onward and upward!

Love,
Crystal

Saturday, November 21, 2009

DAY 153 & 154

Yes, everything is fine...just got busy yesterday. Travis Gardner stopped by to see us...Travis has spent enough time in hospitals, I'm surprised he'll step foot into one when he doesn't have to! Shauna met my Dad and picked the kids up and they got here about 7:30. Rick had a good day of therapy yesterday. In the afternoon they had group therapy where they split all the patients into 3 groups of about 10 and they rotated stations. Station 1 was Wheel of Fortune, Station 2 was bowling and Station 3 was exercise. The therapists are so enthusiastic and so encouraging to the patients. The baclofen pump was increased on Thursday morning and I could tell yesterday the difference. Again, the dip in his functionality...more tone is gone, more muscle has to work...and it really makes him tired.

Today was filled with visitors...Baker, Hattie and Blaine Chapman, Cassie DeFiori, Brenda & Jake Duckworth, Terri, Zac and Aubrey O'Neal, and Terri's mom Sue Ann. So good to see everybody...it feels like it's been ages! And good to catch up on everybody elses lives.

I checked in on the team roping, and Devin said it was a beautiful day and a good turnout. I wish we could have been there...just would like to hug everybody that showed up to do anything. It means alot, and I don't think I can even put into words how much it means to us. I told Rick the other night I said, "I think one or two people might show up for your ropin'" and he turned and looked at me with this smirky smile on his face and slapped his knee twice like, "your funny". Anyway, glad I was wrong!

Riley's comment for the day "the ones who succeed don't give themselves the option of failing."

Rick will not fail, but succeed and declare the works of the Lord.

Love y'all!
Crystal

Thursday, November 19, 2009

DAY 152

So glad to be in Lubbock...the people here are so different than the people in Dallas! The staff here at Trustpoint, from the doctors to the janitors are super people. Rick had 3 1/2 hours of therapy today. His day starts around 8:30 and lasts until 3:00 with an 1 1/2 hour break for lunch.

Judy Miller Helm stopped by this evening and so did Regina Bradbury. People are so good...again it's the west texas hospitality!

So, I remind myself again today...that which doesn't kill you will make you stronger...God has perfect timing...this won't last forever....thank God for everything.

Good night!

Crystal

Wednesday, November 18, 2009

DAY 151

Sorry it's so late...I had visitors and lost track of time. Rick did really well today, he was evaluated this morning by PT, OT, and ST and then had 3 hours of treatment this afternoon. At 3:00 he had to take a nap...I think yesterday finally caught up to him.

Shauna (college roommate) came to see us...the last time she saw Rick he was still in a coma...so there were tears of happiness. Shad Wayne (cousin) came by, too. Rick has always given Shad a hard time (imagine that) and out of the clear blue, totally unprovoked, Rick gives Shad the "loser" sign. Then, it was time for his shower and he looked at Shad and gave him a goodbye salute...so natural looking...something Rick did all the time.

The folks here at Trustpoint have been very good to us and I know our stay here will be great. Also talked to TLC today, and they had a bed come open and can take us as soon as the pump is adjusted...so could be sooner than we originally expected.

Got to get to bed!

God Bless,
Crystal

Tuesday, November 17, 2009

MOVING DAY

We made it to Lubbock with no problems whatsoever! Rick handled the trip great...he got a little nauseated outside of Seymour, but other than that he was fine...and stayed awake the entire trip. We ate lunch at Mom's and got to see the kids for a couple of hours...Cade was totally surprised to see me at school, but Riley was ready and waiting. The absolute best thing happened when we went through Guthrie...all the 6666's cowboys and cowgirls were along the highway waving, whistling and blowing their truck sirens...some were horseback...it was so wonderful. I rolled down the window and Rick waved and he had THE BIGGEST smile I have seen on his face in a long time. That was so nice...organized by Bootsie, by the way...thank y'all so much it made our day! Phil and Zane were at the Lasiter Pens west of town and we pulled over so Rick could say hi to them...I still had tears rolling down my face and Rick still had a smile on his face...it didn't disappear until Pitchfork!

Trustpoint is very nice and so far a very comfortable place to be. Rick had supper and fell asleep about 30 minutes ago. They will evaluate Rick in the morning and then start rehab. We should see Dr. Wolcott tomorrow as well and make a plan concerning the baclofen adjustments.

It feels soooo good to be this close to home...going through Guthrie today was bittersweet, but now that we're this close I'll definitely be getting to go home.

Thanks for all your prayers...God had his angels watching over us again today. I had a nice surprise this morning before we left. Shonda and Paula (two of the techs at Pate I really liked) split the shift last night so that they could both see Rick and I on our last day. They are 2 people I will stay in touch with. Shonda prayed with Rick this morning before we left and gave us a really great send off.

Time to relax! I'll stay the night here with Rick. Thanks again to everyone for everything!

GOD IS GOOD!
Love,
Crystal

Monday, November 16, 2009

DAY 149

Just about all packed up...ready to go. As Captain Call says in Lonesome Dove, "it's a hard trip", but I think we'll make it with no problem. My mom and dad are staying the night in McKinney and will be here in the morning. Bryan and Myranda Baldwin have been so nice as to let us borrow their van to transport Rick in...I know he'll be comfortable. We've got some anti nausea medicine for him and hopefully it will knock him out for most of the trip. He is medically stable, so no need for ambulance...and Bryan and Myranda will charge way less than the ambulance will...I'll bet they'll settle for chocolate cake?!!! We are firing out no later than 7:30, and plan on stopping in Seymour to see the kids and then on to Lubbock.

Figured out how the folks in Hop Bottom, PA know about us...Rick's brother, Guy Wilhelm and his wife are out there on business and shared Rick's story with a church they've been attending. Thanks Tammy and Guy...can't go wrong with more prayers. Rick's been asleep since 7:00...he didn't nap after treatment, so he was very tired. It's a good thing though since he'll be getting up early in the morning.

So, we'll be going to Truspoint Hospital off of North Quaker first and then on to TLC on Nov. 30th. TLC is brain injury rehab just like Pate is. It was founded in 1982 in Galveston when Robert L Moody's (Moody Gardens) son suffered a brain injury and he found that there was not enough brain injury rehabs. They opened a branch in Lubbock last year...it's on 22nd street in the Covenant Medical Plaza. So glad to be getting closer to home...I feel like when I tell Rick we're in Anna, TX he thinks, "where?" Anyway, his orientation and memory continue to improve. One thing he does now is answer "I don't know" when he doesn't know something instead of guessing or making up an answer...that's actually considered progress in brain injuries. The baclofen pump is doing it's job, he's very relaxed and the tone is gone...and we still have a lot of room to adjust the dosage if need be.

Say lots of prayers and I'll be updating tomorrow as soon as we get settled.

God Bless!
Love,
Crystal

Sunday, November 15, 2009

DAY 148

Rick had such a great day...he transferred from his bed to his wheelchair a couple of times with minimum assistance from me. And he was trying to talk a lot today...but I don't read lips too well so I'm not sure what he was saying most of the time.

The WCRR is over and TRR did not win, but everyone made it home with no broken bones or bandages, although Stoney may be a little sore after riding his bronc yesterday. He scored an 82 on a horse that had not been ridden in a ranch rodeo...you can see a picture of it at www.wrca.org under WCRR results, Saturday pictures. There is also a picture of Brogan Rankin and TRR's calf branding run. The WRCA has a foundation that donates to cowboys in crisis, and I want everyone to know that the Thompson Ranch, TRR and several others nominated Rick to receive an assistance check. We received the check back in July and it was such a relief. The Working Ranch Cowboys Foundation is a great organization to donate to.

God bless everyone who has prayed for Rick and given in any way. And where in the world is Hop Bottom, PA? I've told Rick he has folks praying for him from his family in Ojai, CA to Buck Kerns in South Carolina...and now Hop Bottom, PA, too! We are so blessed!

Love,
Crystal

Saturday, November 14, 2009

DAY 147

We had such a good day filled with visitors. Tracy Crain, Kim Poole, Kim, Phillip & Kelsey, & my aunts Margaret & Phyllis all visited today. Rick took a good nap and is resting again right now, but it was so good to see everybody!

I'm getting my car detailed right now...can you believe that? One of the patients here is 21 and he details cars. His mom bought him all the stuff to detail with and said to keep him busy so my car is up first. I've had that car for 5 years, and it's never been detailed!

Lots of packing and washing to do to get ready to head to Lubbock, but I'm so ready. I'm also really tired...this air mattress is getting old!

So humble yourselves under the mighty power of God, and in his good time he will honor you. Give all you worries and cares to God, for he cares about what happens to you. 1 Peter 5:6-7

Good night!
Crystal

Friday, November 13, 2009

DAY 146

Posting early today with GREAT news...we're going to Lubbock on Tuesday! I am so excited. The plan is for Rick to be admitted to a rehab hospital in Lubbock called Trustpoint. Dr. Wolcott who is the medical director for TLC is also a dr at Trustpoint and wanted Rick to go there first for pump management. We will be there approximately 10 days and then transfer to TLC. He will receive therapy while we are there, but it's more like Baylor in that it's a hospital setting.

Today was good...the swelling stayed at a minimum. He got to see Hank again this morning. I asked Cindy to see if Rick knew how to get the rope halter off and so she positioned Hank so that he head was almost in Rick's lap. Rick worked and worked and was finally able to untie the knot...he still has limited range in his left shoulder, so it's hard for him to use his left hand for anything. Then he tried to tie it back...he needed a little help for the physical part, but mentally he knew what he was doing. His speech therapist asked him orientation log questions today. There are 10 questions that are scored 0-3 according to his answer...3 being correct with no assistance. So, a maximum score is 30...he scored a 22 today. He missed the Month and the year which surprised me because those are sometimes the only 2 he gets right! I told him this morning that Stoney scored a 69 on his bronc ride last night. This afternoon I asked him if he remembered what Stoney scored and he said "69"...short term memory loss can be such a problem with a TBI, so I was really happy that he remembered.

Thanks for all the prayers...they are being answered and we are going to get through this. Can't wait to see all our west texas friends & family.

Love,
Crystal

Thursday, November 12, 2009

DAY 145

God blessed us again with a good day. Rick walked forward and backward in the parallel bars today with minimum assistance. He was on his feet for almost an hour straight, and he handled it very well. The swelling was at a minumum today, too. In speech therapy he made some very good vocalization...I had mixed him up some thickened Dr. Pepper before speech...I'm sure that's what did it! This afternoon for the group game we played Bingo. Out of 10 plays I only helped him with 2 and he Bingoed! It's so great to see him understanding everything.

Today is the first round of the World Championship Ranch Rodeo. Days like today are hard...all I could think about is...we should be there. Rick should be helping Stoney get on his bronc and mugging the cow! The kids should be skipping school and packing their swimsuits. And I should be griping about how I don't have enough suitcases to get all our crap packed! Now I'm just praying everybody is safe and comes home in one piece.

I made one phone call today and talked to the kids, Stan and my Mom. Riley had twirling lessons yesterday and she said they were, "awesome, awesome, awesome!" Cade got a mark by his name in class for talking. Riley is going to Roaring Springs this weekend to see her friend Autumn and Cade is going to Vernon to see Broc...hopefully this will be the last weekend we are in Anna...still no word from TLC as to when we might get to move.

Hope everyone has a good night. I pray all the cowboys have a great rodeo and some day soon Rick will be right back out there with them.

Love,
Crystal

Wednesday, November 11, 2009

DAY 144

Rick woke up this morning and the swelling was almost gone! I have to thank the Lord for that! As the day went on the swelling returned, but not like what it was. We saw Dr. Nguyen this afternoon and he pulled Rick's tummy tube! He has had that thing in for about 3 months. For the last 2 weeks we had only been using it for extra water, but his meds have been crushed and given in applesauce and his been on a regular diet for a few weeks and he eats like a horse! He also looked at the swelling on his back and is not worried about it at all. We were also able to get off about 4 medicines...they were mainly ones associated with the tummy tube or the stomach in general.

We're watching the CMA awards right now. Brooks and Dunn are performing...Rick and I went to one of their concerts at Tarleton way back when they were a brand new act...and now they're calling it quits. It's funny...everyone in the house is enjoying the music...especially Walter, he loves music and has even been playing the air guitar!

Blake came by today on his way to Austin. We haven't seen him since we left Wichita Falls. It was great to see him and thank him once again for keeping me connected!

Thank the Lord because he is good. His love continues forever. Psalm 106:1

Good night!

Love,
Crystal

Tuesday, November 10, 2009

DAY 143

We did not get to see Dr. Konen today...it's a long story. We will see Dr. Nguyen tomorrow. The swelling is slightly bigger, but still no signs of infection or other complications. Rick had a great day. His walking was really good today especially with his right leg. The speech therapist said he is doing better making his "p", "m" and "b" sounds...getting much better at putting his lips together. During computer time he played Solitaire again, and did really, really good. They are more concerned about him scanning the screen and hand/eye coordination, but Rick savvys the game and is playing it! Starting tomorrow we will be getting more OT time...we've been here a month and he only gets 30 minutes a day.

Balie Inglish White came by to see us today. We sat outside and visited awhile. When it was time for her to go Rick tipped his hat to her and then kissed her hand...he's such a sweetheart. He is really tired...they checked his vital signs every 2 hours last night just to be on the safe side. He is parked in front of the tv right now, but he's looking at the back of his eyelids!

Don't be afraid, for I am with you. Do not be dismayed, for I am your God. I will strengthen you. I will help you. I will uphold you with my victorious right hand. Isaiah 41:10.

God Bless,
Crystal


Monday, November 9, 2009

DAY 142

Day 142 had ups and downs...glad it's almost over with. The ups are that Rick seems to be getting back up to the level he was before the surgery. He's trying to talk, he's moving around in his wheelchair, he's just overall doing better, and almost back to where he was. The downs are that there is some fluid built up around the incision site on his back. There's no fever, redness or oozing...the medical director at Pate, Dr. Konen (surgeon) and Joyce (medtronic nurse) all believe it is fluid build up due to the fact that his binder was not put on him last night after his shower. So, it makes me frustrated with the staff...again...and frustrated that we won't be able to see Dr. Konen until tomorrow...and that means a trip to Dallas. Dr. Konen was notified today at 3:00, but didn't feel like it was an emergency and so we have to wait until tomorrow. The other down is that TLC still isn't for sure when they will have a room for Rick, but will call back tomorrow and let me know something more definitive.

Now we're back up again...at shift change the shift leader needed to look at Rick's incision and it actually looks better! Praise God...I have prayed and prayed for Rick's healing. I have cried and prayed until I'm exhausted today. There are a couple of techs who are Christians and each have said they're praying for me and Shonda says, keep praying...pray harder and don't lose your faith...so that's what I'm going to do. The sad thing is if their bosses were to hear them so those words to me they would get in trouble...so now I'll pray for them.

Every time I think we're out of the woods, something happens...and I don't understand why. I just know it's one more step of faith God wants me to take and I have to trust Him.

Love,
Crystal

Sunday, November 8, 2009

DAY 141

I did something last night I never thought I'd do...I spent the night away from Rick. This is the first time since his accident that someone did not stay in the room with him. When we were in Wichita Falls family and friends took shifts to stay the night with him and when he was at Baylor he was in the high observation unit with it's own nurse and tech 24 hours a day. I was really tired of sleeping on the air mattress and I hadn't slept good in about 3 nights. After seeing who came on for the night shift, I knew I could trust them to check in on Rick. Shonda and Paula are 2 of the techs that I really like and both have worked almost every night since we've been here. The kids were happy that I went with them even though we crashed as soon as we go to the room, and we were back at Pate at 8:30 this morning...I don't think he ever knew I was gone!

We went to the rec room today and then played some b-ball. The kids left with lots of tears and should be rolling into Seymour about now. When we get to Lubbock things will be so much better! I've been reading the book 90 Minutes in Heaven. The funny thing is, I bought this book the day before Rick's accident and then Jodi sent it to me when we were in WF. It's a very good book and will really get you to thinking.

Think about Jesus' example. He held on while wicked people were doing evil things to him. So do not get tired and stop trying. Hebrews 12:3

Love that I read this in my daily devotional today...do not get tired and give up!

Love,
Crystal

Saturday, November 7, 2009

DAY 140

Hey y'all,its Riley .Me and Cade got here and daddy was still sleeping.We had fun today, mom took us to McKinney.And she took us to The Heard Museum.It was so cool!We went to Academy too!And when we got back daddy was taking a nap. Well we are about to leave so I better get going and let Cade say something.Bye. It's cade here talking to y'all. Now listen here PRAY FOR RICK. love y'all thankyou BYE.

Looks like the kids have said everything there is to say. We're all so tired...Rick's tucked in already and I think we're about to head to bed ourselves.

God bless you all!

Love,
Crystal, Cade and Riley

Friday, November 6, 2009

DAY 139

Rick got to see Hank the therapy horse this morning. They put a rope around the saddle horn and Rick used it to pull himself up out of his wheelchair. Then he grabbed the saddlehorn with his right hand and held the rope in his left. He kept moving his feet around like he was trying to find just the right spot to throw a leg over! It was awesome! He was really bright eyed and checking everything out. And, the PT's let go of him for about 30 seconds and he stood there all by himself! I've got pictures and I'll try to get them uploaded. When his time was up I told him to tell Cindy thank you. He reached his hand out like he wanted to shake her hand, but instead of shaking it, he kissed it! It was so sweet...she nearly cried!

I thought I would hear from TLC today about an exact date, but they didn't call. Hopefully we'll know something definite on Monday.

Praise God for another good day, and I know tomorrow will be even better...cuz the kids will be here! Thanks for all your continued prayers.

Love,
Crystal

Thursday, November 5, 2009

DAY 138

For the first time since his surgery, Rick was able to sit on the edge of the mat with no support. He was able to keep his balance for 2 minutes while reaching out to touch Ashley's hand at various places around him. He also worked on leg lifts and bridges. After about 10 reps he can't do anymore. OT retaped his left shoulder and in speech he worked on making the "p", "b", and "m" sounds. For some reason it's really hard for him to close his mouth...it's even hard for him to take a bite of something if it requires biting down with his front teeth. It's gotten a little better since he got the pump. Another thing I've noticed is that his eyes are closing all the way when he sleeps now...not the whole time he's asleep, but at least part of the time. This afternoon he did standing frame and played Bingo at the same time. He did really good and was able to make several plays on his bingo card all by himself! He still had to have a nap after therapy, but I can tell his endurance is coming back.

People just keep reaching out to help us and I'm always overwhelmed by it. Please know we are so appreciative. God is in control and we have to trust him, but it makes it so much easier with all of you encouragers out there reminding me of that.

Love,
Crystal

Wednesday, November 4, 2009

DAY 137

Much better day today in regards to Rick's endurance and strength. I had a nice little blessing first thing this morning...there was actually hot water in the shower! Yea! Usually it's just luke warm. Rick didn't nap as much and did really good during therapy. Supper was canned soup and salad, so I ordered out from a little cafe in Anna called Crows. We had grilled porkchops, mashed taters, beans, fried green tomatoes and rolls! Ya boy!

I got a call from TLC today saying that we cannot transfer for 2 more weeks. The patient that they thought was discharging is getting to stay 2 more weeks. This patient has not been progressing and his insurance was not going to pay for more therapy, but then at the last minute changed their mind. I'm not happy about it, but at the same time I'm glad that guy got 2 more weeks...there could be a time when we're begging for 2 more weeks. And, as long as I'm here, I think Rick will get what he needs.

Well, time to get Rick in the shower and in bed. He's actually sitting on the couch watching the World Series with me, but at 8:30 it's almost like a switch turns off and he's out!

Love,
Crystal

Tuesday, November 3, 2009

DAY 136

Rick is so tired...I mean tired! His endurance and strength that he had before the pump are just gone! He used to be able to walk 150 ft no problem, now he needs a rest break after 75 feet...but again this is all to be expected. I was a little upset this morning when I found him in his office by himself. He looked a little confused and said he was cold, hungry and his legs hurt. I put his jacket over him and turned out the light for him to rest. Noone even came down the hall to check on him for 30 minutes. Then when it was his computer time, noone was around to tell him what to do, so I helped him play Solitaire. After therapy was over he took a long nap, ate supper, took a shower and went to bed!

I've been working on my continuing education and need to have it done by the end of this month. Dan whose one of the patients here is also a CPA. I've talked about him before...he can get so mad at the drop of a hat, but he's getting better...it's all part of the healing process for him. Anyway, I asked him if he knew what CPA stood for and he said "Certified Public Accountant" and I said "No, it stands for Can't Pass Again!" and he got it...he laughed. Of course his wife tells me his scores were in the top 2%, so maybe it doesnt apply to him!

Praying that the VanDiver's are all doing well and their new addition is a bundle of joy! Also praying for Mr. Myers...if anyone knows an update on him, please post and also let us know if he has a blog going. Also, if Tanya Madron is reading this, please give us an update on Kyler.

Keep on asking and it will be given you; keep on seeking and you will find; keep on knocking and the door will be opened to you. For everyone who keeps on asking receives; and he who keeps on seeking finds; and to him who keeps on kcoking, the door will be opened. Matthew 7: 8 & 9

Thanks again to everyone...we've been shown so much support and it continues to pour in...I have about 500 thank you cards to write!

Love you all!
Crystal

Monday, November 2, 2009

DAY 135

TLC came this morning and accepted Rick...high five to God! Now we just need insurance to come through for us and we'll be west Texas bound! Today was Rick's first full day of rehab since surgery and he did okay...it almost feels like starting over with the tone gone. He was a little tired and took another 2 hour nap today when we got back to the house. His incisions are healing well and he has not complained of any pain. Most of the patients in the house loaded up on the bus this afternoon and went to Allen to eat at Golden Corral. We opted out and had bbq sandwiches. There is nothing appealing to me about getting on that rickety bus and travelling down 75 especially if the destination is Golden Corral!

Praise God for Michelle Striplings successful surgery today. I pray for Michelle to have a speedy recovery so that she and MW can get back home ASAP! The Lord hears our prayers and he will not forsake us.

Love,
Crystal

Sunday, November 1, 2009

DAY 134

Rick was sleepy again today, but I called the Medtronic nurse, Joyce, and she reassured me that he is fine. I just wonder how sleepy is too sleepy. Joyce was at the hospital the day of surgery, and she was like an angel sent from heaven. She took the time to visit with us before and after the surgery and I've called her twice since and she's been nothing but nice. She's been with Medtronic for 18 years and she knows her stuff.

He is wide awake watching the PBR now. We had a visit from Amy Bell today. So good to see her...she actually got Rick to smile when she told the story of him riding across the pasture with his reins in his mouth and his "guns up"...Amy used to be the masked rider for Tech. He tried to act like he couldn't remember the day Amy met him at the cookhouse door at the 6666's and took him down right there on the porch...his glass of tea and cake went flying! She chapped him...he paid her back later!

TLC from Lubbock will be here in the morning to evaluate Rick. I'm confident they will accept him. We should know something from insurance by the end of the week. Please pray we get moved to Lubbock!

I also changed the setting for posting a comment...hopefully more people will be able to post now.

Love,
Crystal

Saturday, October 31, 2009

DAY 133

Rick took advantage of the weekend and slept in as usual. The baclofen pump is definetly working as now when I get him out of bed, he's doesn't push backwards or pop up...he stands slowly and then leans on me pretty good for support. We had our choice of KFC or Taco Bell for lunch and he chose Taco Bell. He ate good and Kelly P's parents brought chocolate chip cookies, and he ate his share of those, too! He took a long nap this afternoon and then we sat outside for a while. We had visitors after supper...Jennifer and Mark Griffin. I worked with Jennifer at Wright's 11 years ago and now she lives in a little community called West Minster that is 5 minutes from here! Mark is the captain of the West Minister VFD. He came on a call to Pate last week, and when I saw him, I thought he looked familar, but never could place him. Then she called yesterday and it all clicked.

These bumps in the road are just the enemy at work. He wants us to all give up...quit praying and just give up on God. But we won't do that...we'll pray even harder until the devil gives up instead. God is at work rebuilding, repairing and restoring Rick. Just like Nehemia had to remain focused to rebuild the walls of Jerusalem we have to remain focused on our assignment (praying for Rick) until his complete restoration. I remember some time back, I told Riley to keep praying for Daddy and she said, "well, I had to quit praying because every time I pray, I have a nightmare" And I said, "well, it looks like the devil got what he wanted...he gave you the nightmares so you would quit praying and it worked" Oh she did not like that at all and had never even thought of it like that...needless to say she's praying for Daddy!

Keep the faith!
Crystal

Friday, October 30, 2009

DAY 132

So, we didn't make it to Baylor. Insurance was not returning phone calls and TLC in Lubbock had already planned to evaluate Rick next week. Since Rick is doing better, we decided it would be best not to muddy the waters with insurance and confuse them about a move to Baylor and then a move to TLC. TLC will be here on Monday and we should know something Wednesday. Rick had a much better day today. He went to bed @ 6:30 last night and didn't wake up until 8 this morning! I checked on him at midnight and he was sleeping like a log...I think the medicine has kicked in enough that he's relaxed and feels good, so he's sleeping good. He did a little PT, OT and ST today. In PT, Christie walked him and she could tell the tone has given because Rick is weak. What happens is tone stiffens the muscles and actually helps you to stand and walk. When you take the tone away, then you can evaluate the underlying muscle. Rick's muscles are weak, and now we have to start building strength. Rick has a huge advantage in being so healthy and strong before his accident...this will help him get his strength back quicker. Bryan came by again today and visited while we had lunch. This afternoon there was a Halloween Party at the rec center and we went and listened to some of the worst karyokee you've ever heard, but it was fun. He took a 2 hour nap this afternoon, cleaned his plate at supper, and is now watching TV, waiting on his first shower since his surgery.

I felt sorry for myself last night watching the World Series all by myself...well not by myself, but not with Rick like was have for 14 years! Seriously...we always watch the World Series and last night he was in bed, so I watched it with Walter! For once he wasn't wondering around and sat and watched 4 innings of the game. Walter also sang "Happy Trails" today at the Halloween Party...he's a good singer.

The kids are in Guthrie this weekend. Jodi is having a surprise B-day party for Riley tonight and then on to the football game. Tomorrow is the fall festival and trick or treating. You can get on my FB page and see some pics of the kids in their Halloween costumes that Lori Moss and Anna Livingston posted...really cute...and thanks for posting those!

I read in my bible last night that you should consider trials as tests...put you faith in God and you will pass your test and not have to take it again! Good advice Joyce Meyer!

God Bless,
Crystal

Thursday, October 29, 2009

DAY 131

Rick didn't go to treatment today. He is better, but not quite ready for full blown therapy. OT and PT came to the house and worked with him a little bit. I've also stretched him some and I'm not able to tell a difference yet. We're also trying to get back to Baylor Rehab for a short stay just until we get the pump tweeked. I'm just not comfortable staying at Pate and Dr. Konen agreed so he called Dr. Carlile and we are waiting on insurance to approve the transfer. Rick was really tired today, but was able to eat about 50% of his meals and has not thrown up anymore.

We had fruitbasket turnover in the house today. 4 of our roommates moved out and 4 new ones moved in. The old roommates got to move up to the Hilltop House which is actually efficiency apartments for people who are more independent. Kelly C went up there and she was so excited...I miss her, but I'll still see her at treatment.

God will open the doors that need to be opened for Rick and He will get us where we need to be. I'm so thankful to all of those who are allowing me to be here taking care of him.

Love,
Crystal

Wednesday, October 28, 2009

DAY 130

What a day...Rick has been nauseated ever since the surgery and today it caused some problems. This morning he had a possible small seizure...I say possible because I saw it, and described it to the doctors, and they say "possible" siezure. It lasted less than 30 seconds and his vitals and responsiveness were normal afterwards. The doctors believe it was probably caused by the anesthetic and all the stimulation Rick had yesterday. I also call the Medtronic Nurse this morning (Medtronic is the brand of pump) and she believes the same thing. It scared me. Dr Nguyen (Physical Med Doctor for Pate) came to see Rick this afternoon and thought he looked dehydrated which would also contribute to a seizure so he sent us to Allen to the hospital for fluids, labwork and a catscan. Everything came back normal and we got back to the house at 7:00.

I never thought I would have a worse anniversary than our first one...but we topped it today. On our first anniversary Rick was working for the power plant and had to go to a plant around Abilene for outage...this meant working 7 days a week for weeks on end. I remember I went to Abilene the weekend before our anniversary and spent it with him, then got up early on Monday morning (the 28th) to drive back to Vernon for work. I stopped in Seymour along the way and my brothers were out of school that day for some reason, and Adam was hauling hay...all by himself. And he asked if I would help him. So, I was feeling so sorry for myself that I just couldn't make it to work...I called my boss and stayed in Seymour hauling hay that day! Then on our 3rd wedding anniversary that's when Miss Riley made her debut and we'll never top that anniversary!

On our wedding night we danced to "Keeper of The Stars" by Tracy Byrd. I think tonight we all need to tip our hats to the keeper of the stars for all the blessings He's given us. It's not always easy, but we have to keep trusting.

Thanks to everyone who made Riley's day special with phone calls and gifts...we are so blessed to have such great friends and family.

God Bless You All!
Crystal

Tuesday, October 27, 2009

DAY 129 CONTINUED

We got to the hospital a little late this morning...the driver couldn't figure out how to operate the bus, and then that good ole' Dallas traffic! It was like sea of red tail lights! My mom made it around 9:00, she was caught in traffice, too. They had the darndest time trying to start an IV on Rick...he was cold, had a low blood presssure, and had not had any fluids and his veins were hiding! They finally got to operating around 10, and he was out of recovery and in his room at 12:30. Dr. Konen checked in with us around 2:00 and said Rick was ready to go. He said the surgery went so well he should have had it videotaped for teaching. We got back to Pate at 5:30 and Rick was starving...he hadn't eaten anything all day. He ate and then threw up...I think just too much on an empty, queasy stomach. He has an insicion on his right abdomen about 4 inches and one on his back about 2 inches. He doesn't have too many limitations and the doc started him on antibiotics just to be on the safe side. Right now he is getting 100 micrograms of baclofen in a 24 hour period...which is really not a lot. We should see results in 48 hours and then the Physical Medicine doctor can start tweeking on the dosage. Right now he is in bed asleep!

This morning when we got to the hospital, he looked down at his left wrist, pointed to it and whispered, "where is my watch?" I said, "its at the house" and that seemed to satisfy him, but it is great that he is becoming more and more aware...his watch is kind of like his pocket knife...he doesn't leave the house without either one.

Tomorrow is Riley's b-day and our wedding anniversary. Getting through this surgery was the best gift I think that Riley or I could recieve! I expect great things from this. I believe God has bigger and better things for us and I plan on fullfilling those. But, for now, I believe I'll head the way of Rick and get some rest myself. Thanks for all your wonderful prayers...may God give each of you a special blessing.

Love,
Crystal

DAY 129

Praise God...it was a success! The nurse said the surgery could not have gone better! Thank you for all your prayers. God has shown his mercy and grace to us once again and we are so thankful. We should be able to return to Pate later this afternoon and I will post again.

Praise The Lord!

Crystal

Monday, October 26, 2009

DAY 128

Oh, the PT's poured it on Rick today. He walked and then was stretched and stretched...so much so that after his last PT session he fell asleep on the mat before we could even get him back in his wheelchair. Rick's brother Bryan came by to see him today and will stop by again on Friday...I told him to expect a different Rick when he sees him on Friday. I'm really putting a lot of hope in the baclofen pump. If y'all remember when we did the trial he responded to it so well it was unbelievable. Today I found out some more info on the surgery tomorrow...the coordinator at Dr. Konen's office didn't know what she was talking about. What will happen tomorrow is the pump will be placed and then Rick will be monitored for 4 hours. If all goes well we will return to Pate and then Rick will see another doctor who will manage the pump and set the dosing correctly. The pump is placed in the abdomen, below the skin but on top of the muscle, and a small catheter goes around into is spinal column to deliver the medicine. He tried to taking the oral dose of this medicine, but he has to take so much orally that it makes him really sleepy and doesn't do hardly anything for his spasticity. With the pump the medicine is delivered straight to the spinal column where it's contained and doesn't cause side effects and he only has to take a small dose. The spasticity is from the brain injury...the message that tells the muscles to tighten fires continuously and the message that tells the muscle to relax is broken. His spasticity has gotten better since the accident, but it's still severe. He has to make 5 times the effort to do something that you or I could do. Most people need the pump the rest of their lives, but not all...and you know how I feel about statistics! Rick has thrown a curve ball at the statistics!

The Lord hears our prayers and will respond. I have a special request...in the morning at 7:30 everyone please say a litle prayer for Rick's surgery to be a success...let's all have the Lord's ear for 10 seconds and ask him be with the doctors, nurses, and Rick and pray for a successful outcome. Thanks so much!

Love,
Crystal

Sunday, October 25, 2009

DAY 127

Rick's been doing a lot of singing today. First, we had a small little cake to celebrate Riley's b-day and he mouthed the words to Happy B-day to her and then helped her blow out the candles on her cake. The kids brought us a CD player today and I turned it on to 92.1 The Possum and Rick started mouthing the words to "Prop Me Up Beside The Jukebox", "There's No Way I Could Make It Without You" and "Mountain of Love"...I was laughing and crying at the same time. And I asked him who sings Mountain of Love and he said Charlie Pride! I love it! I'm so glad to get a radio in the room...some days it's just to hectic to stay out in the living room.

I gave Rick a haircut today and trimmed his mustache and shaved him...he is the hairest man...grooming him is a full time job! Riley will turn 11 on October 28th and our wedding anniversary is the same day...14 great years.

I'm ready to get the surgery for the baclofen pump behind us. Pate will transport us on Tuesday morning. I'm guessing we'll leave here not later than 6 am. I think the drive to Dallas is making me as nervous as the actual surgery!

Thanks to everyone for all your prayers. Keep singing His praises!

Love,
Crystal

Saturday, October 24, 2009

DAY 126

It was a beautiful day here. The kids and I went into McKinney for lunch and then tried to make it out to the Heard Museum to see the Dinosaur Exhibit, but they decided to close 30 minutes early today at 3:30 instead of 4:00...we got there at 3:35! Oh well, maybe next time. Darrell and Lauri and Aunt Chyral made it today, and were so happy to see how good Rick looks. He was a pig today...ate 2 helpings of ham, beans and cornbread at lunch, about 6 cookies, a rice krispie treat, some oranges and big ole bowl of beans and cornbread for supper. Guess what he's doing now...yep...sleeping!

I'm so thankful for a good day...Rick's healing is so obvious and inspiring, and I'm always so glad when other people get to see it first hand...it's healing to their hearts, and we all need that.

Love y'all!
Crystal

Friday, October 23, 2009

DAY 125

TGIF! Glad to have another week behind us...that means we're one week closer to going home! Rick was a trooper today as always. His walking this morning was really good...good gait, speed, and control. His ST made it back today, but I'm not sure what all she worked on with him...she didn't let me know. I did work with him on some writing. He made capital A's that weren't too bad, but his lower case A's did not make a passing grade! He also wrote his #'s 1-10 and they were all legible. We had more visitors today. Don and Susan Grant from Vernon stopped by "on their way to Fort Worth". I don't know if y'all have looked at a map lately, but Anna is actually NOT "on the way" to Fort Worth. It was so great to see them...and Susan baked cookies and rice krispie treats for us. More cards and letters arrived today as well and are such a good reminder that God has angels here on earth. The other thing we (the kids and I) keep telling each other is "this won't last forever". That's something that Lauri Colbert told Riley one day this summer. Riley was asking her a lot of questions and Lauri said, "I don't know the answers to all your questions, but I do know that this won't last forever."

The kids will be here tomorrow...yea! So excited to see them. I miss them terribly. And every time I see them I think..."how did you change that much in a weeks time?". But, the kids believe that the Lord will heal their Daddy and understand that it may take some time, and all of this sacrifice will pay off in the end.

Please pray specifically for the baclofen pump placement to go well, and for it to be the answer to our prayers. The Lord sees the good people and listens to their prayers. 1 Peter 3:12

Thanks again for everything.

Love,
Crystal

Thursday, October 22, 2009

DAY 124

We finally had our team meeting today. I'm getting better and better at handling these initial assesments. The meeting was with the neuropsych dr., Rick's therapists and our case manager. They gave me their evaluation based on Rick's first 5 days here at Pate, and he's made lots of progress since then. With that being said, they say that he will not discharge from here until April. He could possibly be ready for outpatient in December or January, but will need some type of rehab until April. With all that being said, the baclofen pump will change everything anyway, and Rick has always proven everyone wrong up to this point and he will do it again. And that's exactly what I told them...they said they liked my attitude and they hope the same thing, too. Our God is an awesome God!

Glenn and Kimbrew came to visit today. I told Rick they were coming and I asked him "what is Kimbrew's first name" and he said "Robert". Then he said "what about Rae?". Rae is Kimbrew's wife. He also talked to the kids loud enough tonight that they could hear him. Rick's initiation continues to improve. When he drops something he leans over to pick it up, when I push him up to the sink he reaches up to turn the water on. Zakk, one of the techs, taught him a handshake on Saturday, and on Sunday when Rick saw him he initiated the handshake and remembered most of the moves. He can now sit on the edge of the mat or bed withouth anyone behind him. He can hold himself up perfectly, and I make him do it every night when I put him in bed. I sit him on the edge and after he's sat there for a minute, I tell him to lay hisself down. He leans over and puts his head down and then swings his legs up. I've noticed more facial expressions which means his face muscles are getting stronger.

Thank you for your prayers...God Bless You All.

Love,
Crystal

Wednesday, October 21, 2009

DAY 123

I just got Rick out of the shower and in bed...he is really tired. He got an extra 30 minute session of PT today, but his primary therapist was out sick, so he got no ST and only the cognitive that I was able to do with him. His OT time was only 30 minutes...he should be getting at least an hour each day. The baclofen pump surgery is scheduled for Tuesday, Oct 27th. He has to be at the hospital at 7:30 am, but they can't tell me exactly what time his surgery will be. The surgeon practices at a hospital not far from Baylor called Mary Shiels. After the pump is placed it will have to be adjusted be ensure that Rick is getting the right dosage of medicine. Each surgeon that places pumps works with a doctor of Physical Medicine (like Dr. Carlile) to adjust the pumps and the doctor that will do it for Rick is at Baylor Rehab. So, what that means is that after the surgery he will transfer to Baylor Rehab until the pump is adjusted properly. Hopefully, this will be on Tuesday as well...Dr. Konen said it would be considered an outpatient surgery, and I'm not sure how long we will be at Baylor.

I e-mailed pictures to a lot of people today of Rick's visit with Hank yesterday. I will try to get some posted to the blog as well. My FB is not working for some reason. I can read your comments, but I can't reply to them, or read a message, or confirm a request. I sent the e-mail out to a lot of people, so hopefully most of you got to see it.

Thanks for all the love and support that continues to be shown to us. It is amazing to me all the great people out there that are willing to do something nice for us...it means the world. Please keep praying for Rick. Hope to see you all soon.

Love,
Crystal

Tuesday, October 20, 2009

DAY 122

Today was really good. Rick did well in all his therapies AND we got to see Julia his OT from Baylor. She came out with a group from Baylor that was touring Pate. It was so good to see her...I miss the Baylor crew ALOT! Rick also got a little something extra today. He got to see the therapy horse this afternoon. We had actually already come back up to the house when one of the techs noticed that the horses were here. So we went back to take a look. One of the patients that is discharging on Thursday actually got to ride. Balie Inglish White came to us and got to meet "Hank" as well. "Hank" is pretty impressive. He is a 4 yr old double bred Hancock horse that is so extremely gentle and willing to do whatever is asked of him that's it's unbelievable. Rick didn't try to jump out of his chair or anything, but he did certainly seem interested in him. He kept pulling on his nose as if he was looking at his teeth...maybe he didn't believe he was 4 either!

We talked to the kiddos who have been staying with my mom and dad the last 4 nights because my sisters girls are sick. They are doing well...really missing us, and we of course are really missing them.

Jesus will heal Rick...he will heal him in every way.

To grant consolation and joy to those who mourn in Zion-to give them an ornament of beauty instead of ashes, the oil of joy instead of mourning, the garment of praise instead of a heavy burdened, and failing spirit-that they may be called oaks of righteousness, the planting of the Lord, that he may be glorified. Isaiah 61:3

Love,
Crystal

Monday, October 19, 2009

DAY 121

Rick got some good stretching and some walking today. He also did arm bike, leg bike, and standing frame. His primary therapist's last day was Friday, so we met his new one today. She will also be his speech therapist, but he didn't get any ST today because she was trying to figure out how to fit in her new patients. I also found out today that his primary therapist is also supposed to be the cognitive therapist that sits in the office with him to help him with cognitive tasks. However, today I checked on him twice and both times he was in the office alone...how long he'd been alone I'll never know. We met the doctor that takes care of patients out here. His primay job is at Zale Lipshy's in Dallas. He just went over Rick's meds and suggested we not change anything until after the baclofen pump has been placed. He was happy to hear that Rick had already had a baclofen trial and was close to getting the pump placed. He can actually manage pumps after placement and said he would be happy to manage it when he comes out to Pate so that Rick would not have to make any trips into Dallas for adjustments...suits me! He also believes Rick is ready to have his tummy tube out, but wants to wait 'til after surgery just to make sure. We will switch him from the canned feedings to Boost drinks during the day to make sure he still gets enough calories, and his meds can be crushed and given to him with applesauce.

And Jesus, replying, said to them, Have faith in God constantly. Truly I tell you, whoever says to this mountain, Be lifted up and thrown into the sea and does not doubt at all in his heart but believes that what he says will take place, it will be done for him. For this reason I am telling you, whatever you ask for in prayer, believe that it is granted to you and you will get it. Mark 11:22-24

Still standing on faith and still believing every day that "this could be the day". And when it's not, at the end of the day I say, "well, it must be tomorrow!"

Love,
Crystal

Sunday, October 18, 2009

DAY 120

It was a pretty lazy day for Rick. He slept late, ate breakfast, took a nap, ate lunch, took a nap, ate supper and is now in the shower and said he is ready for bed! His Aunt Doe-Doe and Uncle Bobby came by with their g'kids Kay Kay and Chanceton. Kay Kay fed Rick the majority of his supper and I told him he better enjoy it because she won't be here tomorrow! When they got ready to leave, Linda took Rick's hand and kissed it, so he kissed her hand back and made her cry. It's been awhile since they've seen Rick and even though they read the blog every day, it's not the same as seeing it in person, especially the way Rick has been gaining.

The house was pretty calm for most of the day...I guess everybody was sleepy today because most of the patients stayed in their rooms, but right now it is crazy. There are 2 new trainees on tonight...boy are they in for a surprise! I was really proud for Kelly C today...her son came to see her. There are 2 Kelly's in the house right now. Kelly C is 42 and had a stroke. The only words she can say are "uh-huh", "huh-uh", and "shit". I'm not kidding...and I never knew how many different meanings the word "shit" had, but Kelly makes it work for a lot of things. She is so cute, but she is terribly lonely and was so happy to see her son today. Kelly P is from Amarillo. She is 40 and had an aneurism. Either her mom and dad or her husband have been with her the whole time, but she has a 2 year old son at home. He will be here next weekend. Both the Kelly's are really sweet girls and I say lots of prayers for them to get to return to their normal lives. Kelly C and I stayed up last night watching Medea, and laughing our butts off...it was good therapy!

We're ready for another week here at Pate. Things are going better and I'm very thankful for that! Hopefully I'll hear some more specifics on the baclofen pump this week.

Keep the faith!

Love,
Crystal