Dr. Wolcott bumped the pump up again this morning...I was actually a little surprised he did it so soon. He said that it will probably need to be bumped one more time and hopefully we'll have it set. I have a feeling we'll be here at Trustpoint until the middle to end of next week. He got 4 hours of therapy today and then took a 3 hour nap. I just keep praying that his tone will be manageable. His dose right now is not consider high by any means, but it just makes me wonder how much medicine he'll need. If he continues at the dosage he's receiving, he will need a refill in January. Refill is a pretty simple process. The pump has a soft port in the middle of it. The doctor will find the port and use a needle to refill.
I got a phone call today from a girl whose husband was at both Baylor and Pate with Rick. He went to outpatient about 3 weeks before we left. She was upset...having him at home is hard. He can talk and is now walking with a walker, but the docs changed his medicine and he started having pretty bad outbursts. I think she just wanted to talk to someone that understands. I encouraged her and told her it will get better and easier. It's frustrating because there is no "normal" with brain injuries. And we've proven every statistic wrong, so you kind of feel like your Christopher Columbus sometimes. I refuse to be bitter or angry. The answers will come one day and until then I will continue to be devoted to Rick and the task at hand.
Gift #2...4 stockings with our names on them filled with chocolate...Rick and Cade's favorite!