Wow...we've put together 3 good days in a row! His left arm was recast this morning and is doing well. He didn't really participate in neuropsych or ST today, but they were right after the new cast and I think he might have been a little uncomfortable. He had 2 good sessions of PT today. This afternoon Olivia and Katy put him on a mat and rolled him onto his stomach. I just think that after 66 days of being on your back, it might feel pretty good to lay on your stomach. It provided a good stretch for him, but he wouldn't put his head down...he kept holding it up. So, Olivia put a pillow down and said, "Rick, put your forehead on this pillow, and I'll count to 10. When I get to 10 you can pick your head back up". And he did...he understood everything she told him to do. His entire body continues to have tone and Dr. Carlile wants to do a medication trial on him on Friday. The best medicine for spasticity is called Baclofen. However, when taken orally it usually makes him sleepy and only a very small amount of the medicine actually reaches the spinal fluid where it is the most effective. So, the trial would involve injecting 1cc of baclofen into the spinal fluid and seeing what kind of results we get. The procedure is done bedside in a sterile environment, and afterwards PT would work with him to see if it is working. So, please pray the procedure goes well...scheduled for Friday morning. BUT the big deal is IF it works, then Dr. C would want to put an intrathecal pump inside Rick to deliver the required doses of medicine. It is similar to an insulin pump. This is a little scary to me, but she is very confident in the procedure, and Lord knows she's got us this far. There is a nurses aid that works here whose husband has one and she said it is wonderful. Dr. C actually had a patient that this made the difference in being able to walk or not walk. So, again...please pray that what's best for Rick is what will be done.
Rick is taking a shower right now, and then he'll wear his new splints for 2 hours and I'll have to put the eye ointment in...his eyes are looking better already.
I still have my faith and all of your blessings have been wonderful. We still believe!