Okay...this is not what we wanted to hear...the nurse from Baylor did not come evaluate Rick because based on interviews with the therapist and nurse she feels that he is not ready. I'm a little disappointed that she didn't talk to me...afterall I'm with him 12 hours a day, and I see him do a lot more than anyone else around. Baylor says he needs to follow simple commands more consistently, and track with his eyes better. The tracking is just now coming around. They also suggested a neuro stimulant... a medication that stimulates the brain and helps wake it up. Hopefully, we will get this started and see even more progress than we've got. Today he wiggled his toes on command and tried to throw a ball during therapy. Kiran also said his neck control is 100%...no matter what position we put him in, he is able to control his head and neck. He also nodded his head "yes" today in response to a question. So, I still have a lot of positive things to be thankful for...Baylor will come in time.
We continue to recieve so much support that I'm astounded...every day someone else does something that amazes me...you're love for us is so great...I sometimes wonder how I will repay all of these acts of kindness. I know that's not what you want...repayment, but I promise if there is ever a time you are in need, we will be there for you. Thank you so much!
I am the Lord your God, who holds your right hand, and I tell you, "Don't be afraid. I will help you." Isiah 41:13
May God Bless each and everyone of you.
Love,
Crystal
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Don't give up. He will make it to Baylor, just not at this time. Patience and persistence. He has made great achievements thus far.
ReplyDeletecrystal,
ReplyDeletejust like pamela says, don't give up-don't look back, just look forward, he will be there in due time!! just a little more time!
he'll be better by the time he gets to baylor.
God Bless and strengthen all of you, later
rick
we will take good care of him and get him ready for the transition! we'll keep praying!
ReplyDeleteI agree with Rick... just a little more time. Maybe there is a reason for a small wait before entering Baylor. That's just what we've got to believe. It will come with time and prayer and you've got SO MANY prayers for you and Rick. Please don't be discouraged!! I know it will happen SOON. And you KNOW how much progress Rick is making. They will know too, really soon. Hang in there...
ReplyDeleteLove,
Kelly, Reno, Alyssa and Morgan Bradley
Hang in there, you know our Rick, he will show them that he is more than ready!! I'm so proud of him, he is doing good. As I'm listening to the song, God is in Control, not the nurse from Baylor....
ReplyDeleteWe love ya'll so very much. See you soon.
Ronnie, Pollye, Chance and Chase
Crystal,
ReplyDeleteI feel so much better after seeing yall. Isn't it weird, you both were on my mind all day. I never checked the blog-I just knew I needed to come check on yall. I guess I just knew Baylor would accept him and never thought they wouldn't bc of Rick's incredible progress!! Like Scarlett said,"Tomorrow is another day!!". Tomorrow hopefully once he starts the new meds you will continue to see improvements and so will his therapists and nurses. I have to keep reminding myself that God is in control and let him have the reins so to speak!!Cowboy lingo!!Ha! You enjoy your children and TRY to REST!!! It is crazy that you could sleep in tomorrow and let Pooh hang with Rick. Love ya, Aunt Sher, John, and Kelce
Crystal,
ReplyDeleteKeeping hanging in there, we all are still praying for you and Rick. I believe in God's mercy and healing power.
M.L.Bolton
Sometimes it takes only one scripture to help me through the day.........
ReplyDeleteJames 1:4 "But let patience have its perfect work, that you may be perfect and complete, lacking nothing."
Hang in there dear God takes care of his children.
Melissa